Still Here!

Wow, June!  I don't know where the days have gone!

Quick updates.  Alex had been running a fever for 10 days - back and forth to the doctor, and in true Alex fashion, no explanation as to why.  She has missed so much school this year - more than ever. She's also missed more therapy days than she's ever had.  Between no physical therapy because of her spine issues and being sick it's been a challenge getting her where she needs to be.

Zach had his first true dental experience.  He had a small cavity, but it also turned out that he needed a crown.  He was so nervous not knowing what to expect. 

But he got his "elephant nose" to help relax him and he did GREAT - he was very brave.  He had a bit of discomfort the rest of the day, but that was to be expected.  A little Motrin and he was good to go.

We saw the neurologist last week and since Alex was still having seizure activity at night, we've upped her meds again.  She's been on the upped dose over a week, but unfortunately she had another seizure two nights ago.  The next step is going to be adding another seizure medicine to what she already gets to see if that will help any.  Her pattern changed a little bit the week before we saw the neurologist.  Normally her seizures occur in the early hours of the morning, between 2AM and 4AM, but that week she was having them a lot earlier, 9PM and 10PM.   

This Thursday she's going in the hospital to have the MRI of her spine done, and luckily, we were able to coordinate with the MRI department and the operating room so that while she's under the anesthesia for the MRI, they will transport her to the OR so she can have her dental work done too.

Short post, but all I have time for right now!