Monday, June 29, 2009
Monday, June 22, 2009
I got home from work and talked to her nurse for a while. Alex was in a great mood, and she had a great day. Her chest PT and treatments have been working well and all seemed good. Until....
I had been sitting up with her on the floor doing some sitting exercises and it was time for her feeding. She hadn't napped but 15 minutes and seemed kind of tired, so I laid her in her bed and went to go prepare her pump. Came back upstairs and said...Alex, what is on your face?? She had a few bumps and I chalked it up to the excessive drool and runny nose. Started her feeding, and went back in to check on her about 15 minutes later and the entire right side of her face was covered in welts. Aaron came home from work right about that time and I called him up to come look at her - I met him at the top of the stairs, told him what was going on with her face and by the time we both walked over to her bed the welts had tripled! They were on her legs and her stomach. So now I start freaking out. She's been sick thousands of times and never had any remote kind of reaction. My pediatrician is on vacation but he told me after I called him on Friday concerned about her fever and possible aspiration that he would brief one of the doctors at the practice. So I call him and he tells me that he needs to see her "immediately". The practice is 40 minutes away, they lock their doors at 5:30 and it's already 10 minutes to 5. I put her in the car and drive like a mad woman. Half way there I turn around to look at her and literally, her whole body is covered in these red welts. I make it to the pediatrician's office with literally one minute to spare and as soon as I walk in the door they take one look at her, take her from me and race her back to one of the rooms. Ok, my pulse is now pulsating out of the side of my neck! They ran blood work, swabbed her for strep and gave her a full examination. Thankfully, everything checked out ok, her blood work is within normal range, and her lungs sounded clear. So at this moment, they're surmising that this is just her body's way of ridding the virus she has. Good Lord, the child almost put me into a full blown panic attack!!!
I need a new camera, most of the pictures I took before she got totally annoyed with me didn't come out clear...
That's all I have time for now...A very happy birthday to my mom today!! Hopefully it wont be another week before I get to update again!
Tuesday, June 16, 2009
It was so good to see her when I walked in even though she was watching TV and completely ignoring me! It was great to see Christy too - we've seen each other weekly for the past couple of weeks and I missed her! She has the same sarcastic sense of humor I have and she's so easy to be around. I'm not going to say I don't know how she does it, because quite frankly I get uncomfortable when people say that to me - it's your child - of course you're going to 'do it', if there was an option to pick door number 2, all of the mom's in my club that no one wants to be in would have opted for that a long time ago! Anyway, I'm always in awe at 'how' she does it. Harlie's medical anomalies are so extremely complicated - yet Christy can recite more medical jargon than a 3rd year medical student and she has a way of explaining everything in the simplest form so you really get it. Do you know what its like to be away from your home and family for weeks and just sit in a hospital room alllllll day loooooong? Do you know that those hours feel more like days? Do you know what it's like to stare at your child laying helplessly willing them with all your might to get better while the whole time you're keeping your mind from wandering to a place that no parents mind should ever have to go to? If you're shaking your head no then you should consider yourself very blessed and you should go give your kids a kiss and thank God that they are healthy.
By the end of my visit I had Harlie smiling (of course I like to think it was me and not the drugs she's on!). And I'm sorry Christy, but I just have to tell everyone that I did get a kiss...and I'm the only one so far that's gotten a kiss since her surgery!
Here's a picture I stole from Christy because the battery died on my camera...uggghh! Just for Harlie to sit up for 2 minutes exhausts her. But, it was great to see her signing and see a small glimpse of her sense of humor coming through.
Keep your chin up Christy, you have no idea what an inspiration you are.
And hurry up and get better soon Harlie..we miss you and Alex will be anxiously waiting to see you and watch you point to her and sign her name.
Thanks for letting me visit today - big hugs to both of you.
Monday, June 15, 2009
Zach is gearing up for Kindergarten...again, WOW! I can't believe my baby is going to school! He had his last T-ball game this past Saturday. Unfortunately I couldn't be there because I was getting ready for my mom's party, but he received a trophy AND the team's game ball. He was SO excited and told everyone at my mom's party that he got the game ball. He's been walking around with his trophy and ball since Saturday!
Monday, June 8, 2009
I asked him on the way home what his favorite part of his vacation was and he said spending so much time with all of his family. Sigh, that boy just knows how to go directly to my heart!
Alex loved her vacation - she had her favorite man Papa with her all week, and water to splash in...life was good! My brother and sister-in-law took her out "four wheeling" on the beach and I wish I could have captured her face when she looked out the window of the car and saw the ocean right there. It was a real treat for her because none of the other kids got to go riding on the beach - just her.
Loving 4-Wheeling on the Beach!
I took over 200 pictures and wish I could post them all, but here are just a few...
MeMe and Papa with Alex on the Beach
My Mom and My Uncle
My Brother and Sister-In-Law
My Sister and Mr. Shane
Building a Sand Castle with Papa
One of my favorite pictures
Zach and his bucket
Fun on the beach
My two tired men!
Fun on the beach
LOVING the pool!!