I thought I would have to teach my daughter about the world; turns out I have to teach the world about her. They see a girl who doesn't speak,
I see a miracle who doesn't need words.

Monday, May 7, 2012

Updates

So let's see, since my last post....Zach broke his finger, my cat got a raging infection in his face, Alex's spine is not any better, worse in fact, Aaron worked ALLLLL weekend long, he's worked nights the last two nights, Alex is scheduled for dental surgery, oh, and I've lost my sanity! :) Maybe, not really, ok, maybe just a little bit!! :)

Zachary was playing basketball with his friend and fell and broke his finger.  Nothing we can do but splint it.  It's the same finger he broke when he fell off the pogo stick.  Looking a little crooked, but again, nothing we can do about right now.

Last Monday my cat, Max, who was supposed to be an inside cat -  especially after being declawed, and has been an outside cat for the last five years came home with his face all messed up.  He's always been "the" cat in the neighborhood - walks the kids to school every morning - knows to stop at the top of the block before crossing the street, all of the neighbors know him and he's always been outside without a problem, until last week when he apparently met his match.  I will honor my mother's request and not post pictures to show what his face looks like.  Believe me when I say it was DISGUSTING...he had to spend two days at the animal hospital and cost me a whole paycheck, but he's worth it.  The BIG problem has been trying to keep him inside while he's healing - it's NOT been an easy task. 

Alex has been dealing with her back pain and she's been progressively worse.  When she is laying on the floor for a diaper change, or if we dont have her back brace on her she is MISERABLE.  So we were supposed to go back next Wednesday for a follow-up appointment but it was clear it was getting worse.  I called to get an appointment sooner with her doctor and they told me he was out for a few days - I explained that she was in a lot more pain and I didn't want to wait another week to see her doctor so they scheduled her to see one of the other partners.  We had gone for a blood draw earlier that day for her liver checks for her upcoming neurology appointment and she was miserable.  We got to the orthopedic appointment and while we were waiting she was miserable.  The whole time we were waiting for the doctor she was miserable.  The new doctor came in and started asking us questions about her pain and how she's been and Alex opted at that time to be a TOTAL FLIRT with the him.  I went on describing how miserable she's been and the whole time he was examining her she was looking at him all googly eyed and flirty.  He manipulated her a few different ways and she kept batting her eyes at him at smiling.  UGGGGH!  He said she appeared fine and I felt so defensive when I had to explain that I'm NOT a knee jerk reaction parent and I SWEARED she's been miserable.  Uggg, that girl!!!  At one point in the exam he looked at me and said "she really is flirting with me, isn't she?"  Really Alex, you're going to choose this moment to be typical and make me look crazy?!?  By the end of the appointment she was fussy again and the Dr. decided the best course of action was to have her scheduled for a sedated MRI of her spine.  He voiced his concerns of having her sedated, but defaulted to my concerns that it would be in her best interest to have it done.

A few weeks ago we had to go to the dentist.  Turns out Zach has a cavity and is going to need a crown - on a baby tooth no less.  Seemed odd to me that they would crown a baby tooth, but apparently it's not that uncommon.   Alex is an aspiration risk so cleaning her teeth has always been a challenge.  Her teeth have a lot of tartar build up now which is attributed to her blenderized diet and her not chewing, in addition to the constant drool.   She also needs to have three teeth pulled, sealants and x-rays.  The dentist at Children's Hospital filled out paperwork for our pediatrician to fill out for her to have dental surgery, which requires she go under anesthesia.  The anesthesiologist at Children's got the paperwork back and said that she was too much of a high risk to have the procedure done at Children's and that she needed to have it done in a hospital setting (Richmond's Children's is not a full functioning Children's Hospital like most cities).  So we met with a new dentist this week and she is scheduled to go in for that on May 30th....BUT.............with her needing the MRI now, there is no way I can put her under twice in one month so we're going to have to hold off on all of the dental stuff until we figure out what's going with her spine after the MRI.

It's taken me 5 days to write this post....Alex and I are both sick.  Yesterday I went from my bed to the couch back to bed.  Alex started with a cold on Saturday and I just got a phone call from school that she needs to go home because she's got 101 fever.  I'm not sure if it's because she started getting sick but she had a seizure Saturday morning around 4AM and despite our best efforts, her toes are once again all scraped up.  She was supposed to see her neurologist this afternoon but now that's been rescheduled to the end of May. 

Have I ever mentioned that it's NEVER A DULL?!?

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