Happy New Year!

Look who is starting to feel better!

It's been SO good to see her smile again!!!

She still has her moments, but for the most part she is doing much better and is not as miserable.  She still has major issues when we lay her down to change her but we think that is because her sacrum bone has shifted a little and it's very prominent.  Alex still refuses to eat anything solid by mouth so it's been three weeks of only tube feedings and naturally she's lost a bit of weight - almost seven pounds to be exact.  She's already thin as it is so it's made a big difference with how bony she is.  I think we are on the up swing so hopefully eating will fall back into place soon.

 

New Year's Eve we had my brother and our good friends The Morris' over to celebrate.  We had fun being silly with a light up lamp shade....

 

 

And some funny photo cards...

 

 
After dinner we went outside and Scott and Leslie had brought over these big lanterns that you light up, almost like a hot air balloon and send off...

 

It was super impressive to see how far they went and the kids really enjoyed it.

Alex wasn't up at midnight but we all toasted in the New Year and enjoyed each other's company!

 

 

Yesterday was a beautiful day and we decided to pack everyone and the dog up and head to the park - Aaron wanted to take his truck so he put Alex in the front seat and belted her in.  It's one of the first times she has not been in the car in her wheel chair or in a car seat and she LOVED it!  She kept looking out the window and looking all around with this incredible look of wonderment on her face and then she would get the biggest smile on her face.  It really is the simple things that we so take for granted.  She was in heaven.

She was even happier when we got to the park and she and Daddy went for a jog!  That girl loves her some wind in her face!

I took her and Rudy for a few laps while the boys played football....

 

We had some really nice family time - it was a great way to start the new year.

 

I hope everyone has a blessed, happy and HEALTHY New Year!