I thought I would have to teach my daughter about the world; turns out I have to teach the world about her. They see a girl who doesn't speak,
I see a miracle who doesn't need words.

Saturday, October 29, 2011

What A Week

On Monday Alex had another seizure when she was at school.  She was sound asleep for about 25 minutes when it happened.  It's driving me crazy that she is only having her seizures when she is either sleeping or laying down.  I took her to the ENT to see if there's a possibility that she has a form of sleep apnea.  The doctor said her tonsils looked fine, but it wouldn't be the first time that anatomically someone looked ok but had sleep apnea.  He said Alex could possibly have 'central apnea' vs. obstructive apnea - meaning it's not her tonsils, but her brain.  He scheduled her for a sleep study, but when she had the seizure on Monday I called her neurologist and we decided to get the ball rolling to have her admitted into the EMU (Epilepsy Monitoring Unit) at MCV hospital so we are putting the sleep study on hold.

Zachary went back to the Asthma Specialist and his lung function barely improved - he went from 50% lung capacity to only 57% even though he's been on a special steroid for a month.  The doctor put him on a new inhaler twice a day for the next month and we will go for yet another lung function test in a month.  If he hasn't improved then, he may look at repeating the allergy testing he had three years ago to see if his allergens have gotten worse, and if that's case, perhaps looking at putting him on allergy shots.

Somehow, I managed to pull my hip flexor muscle which wound up working its way to my back and I've been laid up for the last three days.  The pain has been pretty intense and I'm NOT used to being 'down'.  I'm not a person who typically takes anything for even a headache.  The doctor prescribed vicoden - which did absolutely nothing.  I called back two days later and the doctor called in a muscle relaxer.  Aaron picked up my prescription at 3:30 ~ I took it at 4:00 ~ by 4:30 I was out like a light and didn't wake up until 7:15 the next morning!  I'm finally starting to get back to normal.  Once again I have to say how wonderful our family and Tabitha is.  I could barely walk on Friday and Tabitha wouldn't leave my side.  She worked 3 and a half hours overtime, took Zach to play with her son to get him out of the house and delayed the plans she had.  Aaron was awesome taking care of the kids and doing everything that needed to be done.  My parents came over today to take care of the kids and brought homemade chili, stew and my dad's infamous meat sauce (oh, and rolls and brownie bites!)  They're awesome and we're so lucky to have them here for us. 

Here's hoping for a better week!

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